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Kylen’s Krew Superhero Walk/Run fundraiser for The Global Foundation for Peroxisomal Disorders

May 6, 2023 @ 12:30 pm - 5:00 pm

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This fundraiser was started by me after I lost my sweet, beautiful 2 1/2 month old son Kylen in August of 2020 to a rare genetic condition known as Zellweger’s Syndrome also known as a peroxisomal disorder. I started this fundraiser to help raise money and awareness for what my son and so many other children and families like ours have gone through dealing with this heartbreaking disorder. I am raising money for research and I am raising money for all of the families who have a loved one affected by this condition so that one day a treatment can be created to give these children a better chance at a life and a longer life. So with me and the help of this amazing organization and the support of so many friends and family, I am asking the public to come out, donate, participate and learn more about what I am fighting for for so many wonderful little warriors and angels like my son Kylen.

Details

Date:
May 6, 2023
Time:
12:30 pm - 5:00 pm

Venue

Jackson Morrow Park
4200 S Park Rd,
Kokomo, IN 46902 United States
+ Google Map
Phone:
7654545575

Organizer

Stephanie Reece
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